Walk To Defeat ALS

Walk to Defeat ALS – Ventura October 28, 2017

On Sunday, October 29th, I packed up my family …my fiance Stacey, four of our kids… Jillian, Caitlyn, Ella, and Hudson, and drove down to Ventura to participate in a 2-mile ALS Charity Walk. The MAIN reason we went down to support this fundraiser was that of Sara Medeiros, also known as Yaya. She is the grandma to our friends, the Tota Family. Yaya was diagnosed with ALS, and the side effects have already begun to surface.  During the walk, Yaya was in a wheelchair being pushed by her daughter, Melissa. It was great to see that several times, Yaya was up and out of the wheelchair, still able to walk alongside us at times and enjoy her loved ones. The Team Hummingbird, with Melissa as the Leader, raised just under $8500 and it was a great celebration as we all came across the finish line. Yaya had so much joy seeing all of us walking in her honor, as well as the many others that suffer from this disease. My family was saddened Yaya couldn’t pronunciate her words, but rather communicate through mumbled speech. At this moment, it was the realization that ALS was truly present in this lovely woman. The Walk to Defeat ALS, helped us to educate our kids about this disease and promote goodwill as an important necessity in our community. We must join together to help fight ALS through continued charity fundraisers, increasing the availability of research funds enabling a cure to be found to stop the spread of ALS.    

I want to thank everyone for helping my family and I joining our Walk to Defeat ALS fundraising goal! Here was an exciting opportunity for my whole family and friends to work together to support those affected by Lou Gehrig’s Disease and to spread awareness of the urgency to find treatments and a cure.

Often this is also referred to as Lou Gehrig’s Disease amyotrophic lateral sclerosis (ALS) is a progressive and possibly fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient can live 2 to 5 years from the time of diagnosis.     

Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will ultimately lose the battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.

This is a crippling disease that can strike anyone.  Presently there is no known cause of the disease, though the support is bringing researchers closer to an answer. The average cost of an average ALS patient is $200,000. a year to provide the care ALS patients need.

Please help make a difference and donate or join a walk today!
http://www.alsa.org

 

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